I want to know if I’m the only one.
sooooo many times.
The amount of notes makes me sad
Wow the number makes me sad.
Source: Where I originally found this
I read this on Lelliefish’s tumblr and decided to do my own list because as she says, eczema is different for everyone and a lot of these things applied before I stopped using topical steroids.
Lelliefish: “eczema is not ‘just a rash’, it is a serious illness which greatly impacts on sufferer’s daily lives.”
Things I have NEVER been able to do (with or without steroids)
Go to all night parties – I wouldn’t go anyway because I have social anxiety disorder and such things terrify me. But if I did and had to stay over, that would be a problem physically due to needing moisturisers on at least twice a day and mine (ointments) are so damn greasy I have to sit around naked for a good hour each time in order for them to sink in - awkward.
Get really stressed – stress makes me flare up. Everywhere.
Wear wool or anything loosely woven - though cotton has always been best for me, I’ve found I can wear polyester just fine if no loose fibers can tickle my skin.
Get sweaty at all. It burns like chilli oil on the skin.
Go to a humid place – See above.
Stuff I can do occasionally/ a little bit
Wash my hands – obviously I can wash my hands, but I have to use a special medicated prescription soap and spend about five minutes moisturising afterwards. When I’m out I just have to wash my fingers, not my palms or thumbs.
Socialise – I need so much prep work to get my skin looking just red and not have half of it falling off there’s not much time left in the day to socialise. Also, social anxiety. :P
Take baths anywhere but at home - When I’ve had an en suite like at a hotel, I’ve been ok because I need to sit around nekkid for a bit to allow the ointments to soak in and do their job. If there’s ANY kind of public view between the bath/room, I can’t. Also my bath oils can wreck certain baths so I’d feel guilty about using them elsewhere.
Be close to anyone – I’m ok with my partner if there’s a layer of fabric between our skin, but I find it incredibly difficult to do such a simple thing as rest my head on his chest. What’s worse is he has a condition called hyperhidrosis where he sweats loads whenever he sleeps and is incurable - so that makes sleep snuggling basically impossible. :(
I think that’s everything - I have to take antihistamines to help with the itching and other allergies, antidepressants for my anxiety problems and moisturisers/special soap/dermasilk/oils for my skin during the day. Not having my steroids to rely on anymore is painful, but I know I’ll heal someday and given I’m past my teens now, I will most likely have no eczema at all underneath! It’s nice to have faith in something. :)
Sometimes with anxiety, I’m just like:
But then when I’m actually alone, I’m just like:
And that is so fucked up I just…